Amy and Robert Gregory recently shared their story on finding out and seeking treatment for their newborn son Gavin, who was born with a deformed head. After coming to specialists at the MUSC Children’s Hospital, they learned that Gavin had Craniosynostosis, which was causing his head to grow in the shape of a football.
Craniosynostosis, occurs in 1 in 2500 births according to MUSC Pediatric Neurosurgeon, Dr. Steven Glazier and because of the irregular shape the brain may not have room to grow. Dr. Glazier encourages new parents who believe their child’s head is shaped differently to check with their pediatrician.
MUSC has been able to help Gavin and many other children with Craniosynostosis through a minimally invasive procedure that Dr. Glazier and a colleague at Wake Forest have been the leaders in implementing in the United States. By implanting a spring in a child’s head, the skull is able to expand correctly as the brain grows.
Amy and Robert Gregory spoke with Channel 5 to this week to spread the word to other parents that might be struggling with the same thing.
Watch the Live 5 Video